does anybody out there have interstitial cystitis?
does anybody get disability for interstitial cystitis, i have beenliving with chronic for for 17 years, 24/7; i have not gone 1 second without pain, does anybody know of anything that can help with this. i don't know how much longer i can stand it
Hello….I am sorry to hear you are suffering from IC.I too was diagnosed with this chronic disease 6 years ago.I have surgery usually every 4 to 6 months which helps a bit.Do you see a urologist regularly? I am living in Canada and yes I was excepted on disability.I also have to do my own catheters my condition has got much more severe as time has passed.Where do you live? I would love to help if you want it and let you know the steps I took to get on a disability.Please email me if you would like.I look forward to hearing back from you.Good luck!
Hi there: I have had IC for over 11 years now, however I am very lucky because it is not severe. I'm kind of shocked actually because I thought it would get worse. I am not sure what you can do, but I do feel badly for you and wish I could help. I don't have pain, but I do always feel like my bladder is full, and I often have to run and only a dribble comes out. When I sleep at night, I keep thinking all the time: should I get up and go to the bathroom? And when I do, nothing comes hardly at all, and five minutes later I repeat the whole thing.
I know there is a website with chat boards you can go which I found very helpful:
http://www.ic-network.com/
there are chat boards there where you can find someone who may be of more help or support than what you can find here. Best of luck to you!
References :
Hello….I am sorry to hear you are suffering from IC.I too was diagnosed with this chronic disease 6 years ago.I have surgery usually every 4 to 6 months which helps a bit.Do you see a urologist regularly? I am living in Canada and yes I was excepted on disability.I also have to do my own catheters my condition has got much more severe as time has passed.Where do you live? I would love to help if you want it and let you know the steps I took to get on a disability.Please email me if you would like.I look forward to hearing back from you.Good luck!
References :
Hi. I have interstitial Cystitis. I was finally diagnosed with it within the past year after suffering with the symptoms for over 9 years. I am currently under evaluation for disability. I take elmeron regularly and have catheter treatments when I have a severe flair-up. I'm one of those rare males that have it. (90% of the people who have it are female) It took so long to get my diagnosis because a number of other male problems mimic I.C. symptoms. Talk with your urologist and see what treatments and medications are availble to you. Watch your diet and see which foods and drink make your symptoms worse. Learn as much as you can about it. There are a lot of resources out there. Good luck to you!
References :
http://www.ichelp.org/