Does anyone have interstitial cystitis and how long was it before you were diagnosed? Did the doctors treat?
you like you were a hypochondriac, until you found the right doctor? Were you put on bladder medications such as enablex and it helped?
It took a long time before the Dx came. I had to have a cysto/ done to complete the Dx. there is a lot involved with this disease and most uro's and doctors do not know how to treat it. I have the interstim implant and take medications, I am also having a bladder sling placed this week. It is important to find a doctor who specializes in this field. I had it probably over 5 years before i was Dx with it. Elmiron is the most common medication. email me private and I will discuss anything you want to know about this condition and there is the ICN network, you can join, it is all about IC. I am a member, each state has it's own support group, and then the national one. Diet has to be changed, and what you are allowed to drink, it is all posted on the ICN boards, it will help you a lot. Did they explain in layman terms to you what this is? and how it effects the bladder? I'd be happy and so would all the members to assist you. Good luck, and please educate yourself, it is the best defense against IC you can ever have! Tash
It took a long time before the Dx came. I had to have a cysto/ done to complete the Dx. there is a lot involved with this disease and most uro's and doctors do not know how to treat it. I have the interstim implant and take medications, I am also having a bladder sling placed this week. It is important to find a doctor who specializes in this field. I had it probably over 5 years before i was Dx with it. Elmiron is the most common medication. email me private and I will discuss anything you want to know about this condition and there is the ICN network, you can join, it is all about IC. I am a member, each state has it's own support group, and then the national one. Diet has to be changed, and what you are allowed to drink, it is all posted on the ICN boards, it will help you a lot. Did they explain in layman terms to you what this is? and how it effects the bladder? I'd be happy and so would all the members to assist you. Good luck, and please educate yourself, it is the best defense against IC you can ever have! Tash
References :
nurse, and patient of IC